Autism Awareness Month

What is autism?

Autism, or Autism Spectrum Disorder (ASD), is a lifelong neurodevelopmental condition. This means it’s a different way the brain develops and works, affecting how a person communicates, interacts with the world, and experiences their senses. It’s not a disease or an illness to be cured, but a different way of being.

Autism isn’t a single line from mild to severe; it’s a spectrum of strengths, challenges, and support needs that shifts from person to person. Think of it like a colour wheel or a sound mixing board. One person might have:

  • Significant challenges with spoken language but have incredible visual thinking and memory.
  • Another might be verbally fluent but struggle immensely with sensory overload (like sounds or textures) and social anxiety.
  • Another might need substantial support with daily living skills but have a deep, focused passion that brings them joy and expertise.

Two autistic people can look completely different from one another, yet both are autistic. Their support needs can also change over time or in different environments.

Beyond Awareness: Why We Need Acceptance

As April arrives, we see a familiar wave of blue lights and puzzle pieces. For decades, World Autism Awareness Month has done a tremendous job of putting autism on the map. But for the autistic community, there is a collective exhale as the conversation shifts from awareness to acceptance.

To understand this shift, we must first understand what autism means to those who live with it.

For many autistic people, the world is a place of intense detail. Where a neurotypical person might see a crowded room, an autistic individual might be acutely aware of the specific frequency of a flickering fluorescent light, the scratch of a clothing tag, and the overlapping layers of five separate conversations. This is often described as sensory processing variance. It can be overwhelming, but it can also be a superpower. It allows for deep, focused interests—what we call “special interests”—that bring immense joy and lead to incredible expertise.

Autism also often shapes social communication. To be autistic is frequently to navigate the world without an inherent understanding of unspoken social rules. Imagine being handed a script for a play everyone else has been rehearsing for years. Many autistic people learn to “mask”—hiding their natural instincts, forcing eye contact even when it feels painful, and mimicking neurotypical behaviour to fit in. While masking can help navigate social situations, it comes at a significant cost. Sustaining this mask often leads to “autistic burnout,” a state of intense physical, mental, and emotional exhaustion that can last for weeks or months.

This is why acceptance is crucial. Awareness tells people autism exists. Acceptance asks people to respect that autistic people think, feel, and sense differently. It means creating environments where a child isn’t punished for stimming (repetitive movements that regulate the nervous system), where an adult can wear noise-cancelling headphones in the office without judgment, and where communication preferences—whether verbal, non-speaking, or typed—are honoured.

When we move from tolerating difference to celebrating it, we lower the rates of masking, reduce mental health crises, and allow autistic individuals to thrive authentically.

Autism in numbers

• A 2023 survey by the National Autistic Society found that 79% of autistic adults in the UK reported feeling socially isolated, highlighting the urgent need for community acceptance rather than just awareness.
• National Autistic Society data reveals that 70% of autistic children in England are educated in mainstream schools, yet 68% of these children report that school is “uncomfortable” due to sensory environments, contributing to higher rates of exclusion than for non-autistic peers.
• A 2021 study by the University of Cambridge found that 70% of autistic adults in the UK experience mental health issues such as anxiety or depression, with researchers linking this high prevalence directly to the long-term stress of masking and a lack of social acceptance.
• Over 263,000 pupils in England are identified with an Autistic Spectrum Disorder (ASD) as their primary type of need. This number has more than doubled in the last decade, increasing from around 100,800 in 2015/16.
• According to the Office for National Statistics (ONS), only 3 in 10 (29%) autistic adults in the UK are in any form of employment. This is one of the lowest employment rates for any disabled group in the country.
• Nearly 9 in 10 (almost 90%) autistic adults aged 40 and over in the UK are thought to be undiagnosed. The rate of undiagnosed autism is particularly high among older adults, with estimates suggesting 96% of men and 97% of women aged 60-70+ are undiagnosed.